WILSON DISEASE
WEBINAR:
JUN 20, 2024
5:30pm to 6:30pm PDT
Wilson disease is an inherited disorder that causes copper to build up in the liver, brain, and other organs. While copper plays a vital role in the healthy development of nerves and bones, too much coper is toxic. Most people with the condition are born with it, but symptoms often don't appear until later in life.
​
Symptoms are typically related to the brain and liver. Liver-related symptoms include vomiting, weakness, fluid build-up in the abdomen, swelling of the legs, yellow skin and itchiness. Brain-related symptoms include tremors, muscle stiffness, trouble in speaking, personality changes, anxiety, and psychosis.
To learn more about this complicated rare disease please register to join us:
Global Fatty Liver Day
MASLD and MASH
WEBINAR:
JUN 13, 2024
5:30pm to 6:30pm PDT
June 13th is Global Fatty Liver Day. Liver Health Foundation is hosting an educational webinar on Non-alcoholic Fatty Liver Disease, also known as MASLD or Metabolic dysfunction-associated Steatotic Liver Disease.
Fatty Liver Disease is the most common cause of chronic liver disease and is the leading cause of liver-related morbidity and mortality. The main characteristic of MASLD (NAFLD) is the buildup of extra fat in liver cells. Globally about one-quarter of the population lives with MASLD.
​
MASH or Metabolic Dysfunction-Associated Steatohepatitis (also known as NASH), is the most severe form of MASLD.
We invite you to join this free educational webinar and learn how to protect your liver and your life. During the webinar our expert hepatologists will respond to your questions.
PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS (PFIC)
WEBINAR:
MAY 30, 2024
5:30pm to 6:30pm PDT
During the 2024 year we are dedicating several webinars to rare diseases among children and adults. This webinar is on Progressive Familial Intrahepatic Cholestasis, or PFIC, which represents a group of rare genetic disorders that cause progressive liver disease and can lead to fibrosis, cirrhosis, and end-stage liver disease. One of the symptoms of PFIC is the insatiable itching of the skin. The pruritus, or itching, may become so severe to cause skin mutilation, loss of sleep, irritability, poor attention, and impaired performance. PFIC1, PFIC2 and PFIC3 are the most common variations of PFIC. In addition, other rare forms of PFIC exist with varying phenotypes, but all present with cholestasis.
In this webinar our expert presenters will provide updated and accurate information about PFIC, symptoms, and available treatments. while responding to your questions.
WHAT IS HEPATORENAL SYNDROME (HRS)?
WEBINAR:
Feb 29, 2024
5:30pm to 6:30pm PDT
Hepatorenal Syndrome is a life-threatening medical condition that consists of rapid deterioration in kidney function in individuals with cirrhosis, ascites, portal hypertension, or sudden liver failure. HRS may be fatal unless a liver transplant is performed, although various treatments, such as dialysis, can prevent advancement of the condition. The only certain way to prevent HRS is to keep your liver healthy.
To reduce your risk of developing cirrhosis, avoid drinking excessive amounts of alcohol, and avoid contracting Hepatitis. To learn more register to attend our free webinar on HRS
LIVER CANCER-PART I
Liver cancer remains a global health challenge. Hepatocellular carcinoma (HCC) is the most common form of liver cancer and accounts for about 90% of cases. With approximately 906,000 new cases and 830,000 deaths in 2020 worldwide, primary liver cancer was the seventh most diagnosed cancer and the second leading cause of cancer death. Hepatocellular carcinoma (HCC, representing 75–85% of cases) and intrahepatic cholangiocarcinoma (ICC, a rare form of cancer that occurs in the parts of the bile ducts that are within the liver, representing about 10% ) are two of the most common primary liver cancer.
Please join us on February 15th to learn more about liver cancer, its causes, the new early-detection diagnostic tools and treatments.
A PATIENT'S JOURNEY
AUTOIMMUNE HEPATITIS
Autoimmune hepatitis is when your body's infection-fighting system (immune system) attacks your liver cells. It is a long-term chronic liver disease that causes inflammation and liver damage. Experts don't know what causes it, but it is more likely to appear in people living with other autoimmune conditions.
Symptoms include fatigue, abdominal discomfort, and joint pain. When treated early, it often can be controlled with drugs that suppress the immune system. In some cases, a liver transplant may be needed.
​
Alyssa McCarty was diagnosed with this condition when she was eleven years old. Dr. Mitchell Katz of CHOC hosts a conversation with Alyssa to open a window into the lives of those who suffer with Autoimmune Hepatitis.
HCC, HEPATOCELLULAR CARCINOMA
Liver Cancer is still one of the major causes of cancer related deaths.
​
While deaths due to cancer is decreasing in the United States, Liver Cancer is still one of the major causes of cancer related deaths. This webinar brings the most updated information on hepatocellular carcinoma (HCC), available treatments and surveillance. During the webinar, the audience members were able to submit their questions to our speakers.
A PATIENT'S JOURNEY - PFIC
PFIC or Progressive Familial Intrahepatic Cholestasis is a rare genetic liver disease that left untreated can cause more serious and dangerous liver diseases. In this episode of “A Patient’s Journey” Dr. Kohli sits down virtually with the mother of two children who are living with PFIC. Season De Angelis describes her children’s situation as she says: “I have three beautiful girls. My older daughter does not have PFIC. Sylvie, who is four years old, has been living with PFIC-4 since she was three months old. We learned through trial and error that her itching was not related to any allergy but is caused by a liver condition. I just learned that our three-month old baby, Genevieve, is also living with PFIC-4. I am sharing our stories to help other parents and kids who are living with PFIC.
WHAT IS HEPATORENAL SYNDROME (HRS)
Hepatorenal syndrome (HRS) is a life-threatening medical condition that consists of rapid deterioration in kidney function in individuals with cirrhosis of the liver or sudden liver failure. HRS may be fatal unless a liver transplant is performed, although various treatments, such as dialysis, can prevent advancement of the condition. The only certain way to prevent HRS is to keep your liver healthy.
To reduce your risk of developing cirrhosis, avoid drinking excessive amounts of alcohol, and avoid contracting Hepatitis.
PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS (PFIC)
February is Rare Disease Month (#RareAware). We are dedicating this webinar to Progressive Familial Intrahepatic Cholestasis, or PFIC, which represents a group of rare genetic disorders that cause a progressive liver disease and can lead to fibrosis, cirrhosis, and end-stage liver disease. One of the symptoms of PFIC is the insatiable itching of the skin. The pruritus, or itching, may become so sever that causes skin mutilation, loss of sleep, irritability, and poor attention and impaired performance. PFIC1, PFIC2 and PFIC3 are most common variations of PFIC. In addition, other rare forms of PFIC exist with varying phenotypes, but all present with cholestasis.
In this webinar our expert presenters will provide updated and accurate information about PFIC, symptoms, available treatments, and living with PFIC.
LIVER CANCER &
LIVER TRANSPLANT
Liver Diseases account for 2 million deaths per year. In 2020, 830,200 people died of liver cancer. Liver transplantation, one of the only treatments for end-stage liver disease, is the second most common solid organ transplantation, yet it remains largely inaccessible due to the lack of availability of suitable livers for transplantation. Renowned hepatologists and transplant surgeons discuss liver cancer and will walk you through the life-saving liver transplant surgery.
RARE PEDIATRIC LIVER DISEASE- BILIARY ATRESIA
During this webinar Dr. Amrita Narang offers a comprehensive discussion on Biliary Atresia, its causes, and current treatments.
In the second part of the webinar, Dr. George Yanni hosts a round table with two young Biliary Atresia patients and their families to open a window into the lives of those who live with Biliary Atresia.
ALCOHOL, DRUGS AND
YOUR LIVER
Dr. Arpan Patel (UCLA) conducts a comprehensive presentation about the impact of alcohol and prescription and recreational drugs on your liver.
He ends his presentation by offering suggestions for healthy living, the best diet for a healthy liver and ways to help your liver stay strong.
NON-ALCOHOLIC FATTY LIVER DISEASE, NAFLD/NASH
HEPATITIS
ORGAN DONATION
​
Mr. Mone has been leading OneLegacy since 2000. Under his leadership OneLegacy is now serving 20 million people, 200+ hospitals, and 10 transplant centers. In 2020, OneLegacy recovered 548 organ donors, 1,661 organs for transplant and 2,525 tissue donors: doubling organ donation and tripling tissue donation since 2000.
LIVER CIRRHOSIS
Annually more than 200,000 cases of Liver Cirrhosis are diagnosed in the United States. In this webinar, our expert panelists provide updated information about Cirrhosis, its causes, risk factors and available treatments.
Dr. Kahn’s presentation focuses on symptom control for people who have cirrhosis, emphasizing that taking control of one’s health and promoting a healthy lifestyle with diet, exercise and positive thinking can improve quality of life and patient outcomes.
​
Dr. Sundaram’s presentation discusses the definition of cirrhosis and how to determine whether you as a patient have cirrhosis or not. He will then describe the different stages of cirrhosis and how they correlate with short and long-term survival, along with the need for transplantation.
RARE PEDIATRIC LIVER DISEASE (PFIC)
In this webinar our expert speaker, Dr. Rene Romero, offers information about this rare pediatric liver disease and shares the story of a PFIC patient. PFIC or Progressive Familial Intrahepatic Cholestasis represents a group of rare genetic disorders that cause a progressive liver disease and can lead to fibrosis, cirrhosis, and end-stage liver disease.
A debilitating symptom of PFIC is pruritus (insatiable itching) which may be so severe that it leads to skin mutilation, loss of sleep, irritability, poor attention, and impaired school performance. The most common variations of PFIC are PFIC1, PFIC2, PFIC3.
PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS
PFIC or Progressive Familial Intrahepatic Cholestasis represents a group of rare genetic disorders that cause a progressive liver disease and can lead to fibrosis, cirrhosis, and end-stage liver disease. A debilitating symptom of PFIC is pruritus (insatiable itching) which may be so severe that it leads to skin mutilation, loss of sleep, irritability, poor attention, and impaired school performance. In this webinar our expert speaker discusses the symptoms, verity of PFIC, treatment options, and living with PFIC.
LIVER CANCER (HCC)
Liver Cancer is the fastest growing cause of cancer deaths in the United States. Our goal in offering a series of webinars on liver cancer is to provide accurate and updated information about various forms of liver cancer, new treatments that are available or are in the process of being approved.
​
Dr. Melstrom’s presentation focuses on “Modern Management of Cholangiocarcinoma,” cancer that begins in the bile duct, a duct which carries bile and digestive fluid through the liver.
​
Dr. Bhayani offers insights into HCC, and the new treatments that are available. Liver cancer often is associated with liver damage, cirrhosis, and viral hepatitis.
ALGS & BILIARY ATRESIA
IN CHILDREN
Alagille Syndrome (ALGS) and Biliary Atresia are rare genetic disorders which impact a child’s bile ducts and the liver.
In this webinar our experts in pediatric liver disease provide in-depth information about ALGS and Biliary Atresia: their causes, risk factors, available treatments, and long-term impacts of these diseases on a child’s growth and life.
SAY HELLO TO YOUR LIVER
Without a functioning liver, a person cannot survive. Liver is your body’s largest solid organ. On average, it weighs around 3 pounds in adulthood. It performs over 500 vital functions. These include removing waste products and foreign substances from the bloodstream, regulating blood sugar levels, and creating essential nutrients.
“Say Hello to Your Liver” provides comprehensive information about the liver as an organ and its importance and nutritional guidance for keeping your liver healthy. Healthy liver means healthy life.