A PATIENT’S JOURNEY
2022 WEBINARS/SEMINARS
Over the years our focus has been on providing accurate and updated medical information to liver patients, their caregivers, and family members. Your encouraging emails, letters, and phone calls have been our guiding lights and have told us that we are on the right path for you.
In late 2021 we experimented with a new program called: A Patient’s Journey. Our first guest was Alyssa McCarty who sat down with one of her doctors at Children’s Hospital of Orange County, Dr. Katz. Alyssa bravely and honestly talked about her Autoimmune Hepatitis’ diagnosis and the journey she has been on for the past three years. Your response to this program was overwhelming and heartwarming. You wanted to hear more.
We are proud to announce that we have planned a new series of webinars/seminars for 2022. We have named this series “A Patient’s Journey.” Each month we will sit down with a liver patient and his/her physician and listen as our guest patient talks about their heroic journey. Our hope and goal is to bring hope to all liver patients, to highlight their lives after liver disease. We invite you to join us in this emotional and impactful journey.
A Patient’s Journey – Biliary Atresia (COMPLETED)
An informal roundtable conversation between a young liver patient who is living with Biliary Atresia and her physician, Dr. Rohit Kohli. Liver Health Foundation is proud to turn the spotlight on a young liver patient who in her own words will tell us the story of her life from being born with Biliary Atresia to now becoming a teenager and what life means after liver disease. We invite you to join us for this moving and uplifting webinar.
Host and Moderator: Dr. Rohit Kohli – Children’s Hospital of LA
Guest: Molly Clark, 12-year-old Biliary Atresia patient and Her Family
Date: Thursday, 20 January 2022
Time: 5:30 to 6:30 pm Pacific Time
Location: Webinar
A Patient’s Journey – PFIC-Progressive Familial
Intrahepatic Cholestasis (COMPLETED)
Dr. Kohli will sit down virtually with the mother of two children who are living with PFIC. Season De Angelis describes her children’s situation as she says: “I have three beautiful girls. Two of them have PFIC. I am sharing our stories to help other parents and kids who are living with this terrible disease."
Host and Moderator: Dr. Rohit Kohli – Children’s Hospital of LA
Guest: Ms. Season De Angelis, Mother of 2 Children with PFIC
Date: Wednesday, 17 March 2022
Time: 5:30 to 6:30 pm Pacific Time
Location: Webinar
A Patient’s Journey – A Liver Cancer Survivor's Story
During this webinar Liver Health Foundation will host an informal roundtable discussion between a liver cancer patient and his/her hepatologist. The goal of this program is to open a window into the inner lives of liver cancer patients and follow them in their journey from diagnosis to treatments and hopefully to recovery.
Host and Moderator: TBD
Guest: TBD
Date: Thursday, 24 February 2022
Time: 5:30 to 6:30 pm Pacific Time
Location: Webinar